Category: My Life with MS

  • Defeated and/or Failure

    I haven’t written in over two weeks. This is how I’ve been feeling in every aspect of my life. I don’t write because I’m hoping it will go away but so far it hasn’t. Health/Relationship – Finally confronted Peter as to what I want and as predicted a fight ensued with no resolution. I will…

  • Trigeminal Neuralgia, again

    “I’d be so anxious about whether the pain was coming, that I’d almost manifest it. It is a vicious cycle” Whitney Cummings This quote is from an article in https://www.brainandlife.org/ She writes about living with migraines throughout her life. I changed a few words to reflect what I’m dealing with. The quote struck me because…

  • Neurologist, 6 Month Visit

    I had my six month visit with Dr. Oh, my neurologist at VCU. I had concerns about how tired I am and also about the Trigeminal Neuralgia. He did the usual tests for strength and dexterity. He was more concerned with how stiff my legs were and suggested taking one Tizanidine during the day, along…

  • Full Mind

    There’s so much on my mind, I feel like my brain is on overload. Every day I have all these things in my head that I want to write about and don’t. I’ll go bury my brain in games because I can’t articulate how I want to write, there’s so much! I’ll start and all…

  • Monthly Weigh In – September ‘25

    147.3, down 3 lbs.

  • Struggling

    I woke up this morning with back pain radiating down the left side. Hoping it would go away as the morning progressed. Tomorrow we’re leaving for NC for the weekend. My friends Paulette are Gary are coming to stay with us. The pain did subside and the weather was nice and cool so I wanted…

  • Doctor’s Appointments

    The past two weeks I have spent going to the doctors appointments that I had to reschedule due to traveling. My first one was to the Endocrinologist to check in and have blood work done. It came back that my Vitamin D levels were down so he told me to double the dose, (from 3000…

  • Shopping

    Sunday I was on a mission. I had an appointment at Short Pump Town Center, (a large outdoor mall). I went by myself, needless to say there were no handicapped parking spaces. I parked in a regular spot and hoped no one would park too close so that I could get the wheelchair in and…

  • Pure Joy

    It’s little things like this that can make my day and bring a smile to my face and letting the wonders of nature soothe my soul Eastern Tiger Swallowtail I was cutting spent blooms on Butterfly Bush and was blessed by the appearance of these butterflies. Silver Spotted Skippers There were around ten of these…

  • Negative Thoughts

    The past two mornings I’ve woken up around 5 am with all these negaive thoughts and worries going round and round in my head. I can’t go back to sleep even though I try usinjg breathing techniques that I’ve used in the past. Here’s how it goes; Worrying about Jen and how she’s wasting her…