Category: My Life with MS

  • Back in VA

    Back in VA

    We’re back around a week. A fun but exhausting trip. The trip up was good. Left at 4 am. No traffic, made it in 7 hours. Seeing Brylee was the best. Unfortunately she had the flu. I didn’t care, nothing was going to keep me away from her. It was just the sniffles. We got…

  • New York for Christmas

    New York for Christmas

    We’re leaving at three in the morning. I dread this ride. I’m hoping to get to Bryan’s by four. Saturday is Brylee’s recital. I’m very happy I’ll be able to see her. She is so unbelievably cute and can dance, she knows her routines. On Monday is “cousins night.” I love getting together with my…

  • Therapy

    On Thursday, December 11, I had my third appointment with my new therapist. I was a wreck. I had been up all night full of anxiety about the upcoming holiday, my kids, still being sick, crying at everything. Feeling like I had no life, I wasn’t living the life that I wanted and there was…

  • Back to the Garden Shop

    Back to the Garden Shop

    On Wednesday, 12/10 I made the decision to go back to volunteering in the shop. I didn’t feel good but I had to get out of the house. It might not have been a physically healthy decision, BUT it was essential to my mental health. I knew I would be emotional. As soon as I…

  • Feeling Terrible

    It’s almost a month and I’m not better. It’s depressing. I’m very tired, I can sleep all day. I have been taking afternoon naps. I don’t want to spend afternoons sleeping. My legs are not back. I’m easily winded. I’m having pain in my right hip. I had a follow-up doctor’s appointment yesterday but she…

  • Monthly Weigh In Dec. 2025

    Monthly Weigh In  Dec. 2025

    I had no expectations, didn’t care too much. Surprise, 104.4. Encouraging, but honestly I haven’t had much of an appetite. When asked at the doctor’s office I said I was 153. That describes me as overweight. Discouraging.

  • Hospital Test Results

    The other day I took the time to read the result of all the tests that were done when I was in the hospital. MRI’S MR Cervical Spine w/wo Contrast- no active lesions. C-2, C-3: moderate right foranimal stenosis. C-3,C-4: severe bilateral foranimal stenosis. Posterior spondylosis complex. C-4, C-5: same as above with disc protrusion…

  • Still Sick

    It’s been two weeks since I was discharged from the hospital. My first night home I was trying to get to the living room couch, about 8 normal steps (I was sleeping there because Peter was coughing like crazy). I immediately felt like I wouldn’t make it. I had three steps back to where I…

  • Passport Photo

    It’s still Thanksgiving and after dinner we took a ride to Wrightsville Beach. I saw a CVS that was open and asked if we could stop so I can get a passport photo. I’ve needed to do this for over a year. I wanted to do it today because I had makeup on and my…

  • Happy Thanksgiving

    We’re in the house in NC, just the two of us. I was on a mission. I still am experiencing a lot of pain from my fall. I think I either cracked or broke a rib. Pete thinks I should have it checked out but I’ve had enough doctors and tests, besides they can’t do…