Full Mind

Category: My Life with MS

  • Therapy and Pete

    I’m still going to therapy for my brain. I go once every two weeks. Sometimes I don’t want to go because I don’t accomplish anything I said I would. Last session we discussed my relationship with Pete. I had truly had it. He is just so miserable, negative, and never wants to do anything fun.…

  • Flowers = Joy

    The other day I was fighting with Pete, totally frustrated, feeling trapped and then I looked out my kitchen window. From here I see the Butterfly Bush with Skippers flitting around. I see the Impatience I planted in front of two shade trees. I see the birdbath with a squirrel drinking and I see the…

  • CAR T-cell therapy

    My daughter texted me an article on this CAR T-cell therapy that blew my mind! It is defined as: “an emerging investigational treatment for multiple sclerosis, (MS) aimed at “resetting” the immune system. By genetically modifying your T-cells to specifically target and eliminate disease-driving B-cells. This one time infusion seeks to help inflammation and potentially…

  • Feeling Healthy

    I am happy and grateful to report that I am feeling very healthy. I feel I must acknowledge this because of so many months of dealing with one problem after another. The infections, hospitalizations, Trigeminal Neuralgia, cluster headaches, and hip and neck pain. Right now I am attributing this healthy feeling to two things; Physical…

  • July 4, 2026

    This year marked the United States historic Semiquincentennial, celebrating 250 years of American independence. I was very into it, and ordered special shirts and earrings to wear on that day! We went down to NC as planned. In our community, River Bluffs, they had their annual golf cart parade and then we went to the…

  • Monthly Weigh In – July2026

    127.2. Again, better than I expected. I had two pieces of carrot cake, ice cream, chicken wings and some cocktails.

  • Ocrevus, Prolonged Use

    Ocrevus, Prolonged Use

    I had my nine month appointment with my neurologist, Dr. Oh at VCU. We discussed my past two hospitalizations. They were both for infections that exacerbated my MS. It is called a “pseudo episode.” I learned, (which I feel I should have known), that the longer you’re on Ocrevus, the more susceptible you are to…

  • Monthly Weigh In – June 2026

    Monthly Weigh In – June 2026

    I can’t believe it, 128.6 pounds. I’m so happy! This diet is really working. It is quite repetitive even though I am a creature of habit. The other thing I have to work on is firming up. That is where Physical Therapy with Stephanie comes in. She is helping me work on my core, I…

  • Health Update

    It’s been awhile since I’ve written about my health. There’s a lot going on, different doctor’s appointments weekly. When I was in the hospital they did a chest scan and found a small growth in my left lung. The Thoracic surgeon made an appointment for three months at which time he would do another chest…

  • Monthly Weigh In – May 2026

    Whew, I gained one pound, now 134. I haven’t been as strict as I was because we were on vacation. We ate out a lot but I did stick to fish, (salmon, fish tacos). I had some Espresso Martini’s, ice cream, chicken wings and nachos with guacamole. I’m lucky I only gained one pound!!