Category: My Life with MS

  • New York, New York

    New York, New York

    On Thursday we are leaving for NY. We are staying with Bryan for three days, then heading to the city for four days. Pete didn’t want to spend 22 dollars a day for parking so he made reservations at a Marriott in NJ so then we can take the ferry into the city every day.…

  • Therapy, (for the mind)

    I recently stopped seeing Katy, out of Innsbrook Primary Care. I thought I had a good therapist but my last two sessions had me questioning what I was getting out of this. This started with her blunt question, “why are you here?” I told her that it felt good to unload my feelings and get…

  • Monthly Weigh In – Oct.’26

    This month I was very surprised to weigh in at 123.8. I’m not trying to lose any more weight, but obviously I am. When I first started this AI diet in February, I have lost 20 pounds.

  • Leg Braces & PT

    After three visits to the Hanger Clinic with no measurements or braces selected or ordered, I have decided not to get leg braces. Honestly, I know that I won’t wear them. I won’t wear them volunteering in the garden shop, or gardening in the yard. I won’t wear them shopping or going out to dinner…

  • Botox and Braces

    Today I went to see Dr. Moen for more Botox. I didn’t want to go, I don’t think Botox has done anything for me. She upped the dosage to 300 mg., two needles in right calf and three in the left, (weaker ankle). She really wants me to get the leg braces. I have decided…

  • Monthly Weigh In – Sept. ‘26

    Again, to my surprise, 125.6. This is great. I’m not depriving myself of anything. I go out to eat about once a week. The other day I had grilled shrimp tacos with chips and salsa. I also had a cocktail, “creamsicle,” at Brunches in Mayfaire Town Center in NC. I’ve had ice cream daily, but…

  • Ocrevus

    I had my blood work done and spoke to the doctor this morning. I still have no B cells, so we discussed my options for continuing with the Ocrevus infusions. After asking questions and discussing the pros and cons of discontinuing, I decided for now to discontinue. I have been receiving these infusions for ten…

  • Splints for Ankles

    My physical therapist wanted me to get fitted for splints, this is something that I’ve never had before. I am also separately, being fitted for braces from the knee down that I’m to wear daily. Anyway, Dynasplint is the name of the company, and she came right to the house. She was very nice and…

  • Car T-Cell Therapy II

    Dr. Oh, my neurologist at VCU got back to me and let me know that because of my age I was not eligible for any trial, (Unfortunately I did understand that this is typical). I also heard from Bristol Myers, who sent me links to their open studies. I haven’t opened any links because the…

  • Monthly Weigh In – August 2026

    This month my weight is the same as July, 127.2 lbs. That’s good, as long as I’m not gaining. I feel good, my clothes are fitting me better which I love. Isn’t it funny how when you get older you don’t like tight clothes. In my younger years it didn’t matter that you had to…