Full Mind

Category: My Life with MS

  • Monthly Weigh In – Sept. ‘26

    Again, to my surprise, 125.6. This is great. I’m not depriving myself of anything. I go out to eat about once a week. The other day I had grilled shrimp tacos with chips and salsa. I also had a cocktail, “creamsicle,” at Brunches in Mayfaire Town Center in NC. I’ve had ice cream daily, but…

  • Ocrevus

    I had my blood work done and spoke to the doctor this morning. I still have no B cells, so we discussed my options for continuing with the Ocrevus infusions. After asking questions and discussing the pros and cons of discontinuing, I decided for now to discontinue. I have been receiving these infusions for ten…

  • Splints for Ankles

    My physical therapist wanted me to get fitted for splints, this is something that I’ve never had before. I am also separately, being fitted for braces from the knee down that I’m to wear daily. Anyway, Dynasplint is the name of the company, and she came right to the house. She was very nice and…

  • Car T-Cell Therapy II

    Dr. Oh, my neurologist at VCU got back to me and let me know that because of my age I was not eligible for any trial, (Unfortunately I did understand that this is typical). I also heard from Bristol Myers, who sent me links to their open studies. I haven’t opened any links because the…

  • Monthly Weigh In – August 2026

    This month my weight is the same as July, 127.2 lbs. That’s good, as long as I’m not gaining. I feel good, my clothes are fitting me better which I love. Isn’t it funny how when you get older you don’t like tight clothes. In my younger years it didn’t matter that you had to…

  • An Evening Out

    An Evening Out

    On August 7 I went to see Leanne Morgan, The Time of our Lives Tour at The Altria Theater. I got the tickets months ago when they went on sale and Stevie agreed to go with me. I got the handicapped seating, which at Altria Theater are orchestra seats, (the last row). There was a…

  • Therapy and Pete

    I’m still going to therapy for my brain. I go once every two weeks. Sometimes I don’t want to go because I don’t accomplish anything I said I would. Last session we discussed my relationship with Pete. I had truly had it. He is just so miserable, negative, and never wants to do anything fun.…

  • Flowers = Joy

    The other day I was fighting with Pete, totally frustrated, feeling trapped and then I looked out my kitchen window. From here I see the Butterfly Bush with Skippers flitting around. I see the Impatience I planted in front of two shade trees. I see the birdbath with a squirrel drinking and I see the…

  • CAR T-cell therapy

    My daughter texted me an article on this CAR T-cell therapy that blew my mind! It is defined as: “an emerging investigational treatment for multiple sclerosis, (MS) aimed at “resetting” the immune system. By genetically modifying your T-cells to specifically target and eliminate disease-driving B-cells. This one time infusion seeks to help inflammation and potentially…

  • Feeling Healthy

    I am happy and grateful to report that I am feeling very healthy. I feel I must acknowledge this because of so many months of dealing with one problem after another. The infections, hospitalizations, Trigeminal Neuralgia, cluster headaches, and hip and neck pain. Right now I am attributing this healthy feeling to two things; Physical…