Category: My Life with MS

  • “Can Do” Versus “Can’t Do”

    I had a virtual appointment with my therapist this week. We talked about how I always concentrate on what I can’t do instead of what I can do. This wouldn’t be the first time and probably not the last time this will be discussed. I’m a very slow learner, or more likely, the things I…

  • Health Update

    Today the headache is gone. I’m still using the wheelchair and taking Meloxicam once daily for the tendon in my groin. Last night I started having a stiff neck. That’s nothing new, it comes and goes. It’s probably my fault because yesterday I went on my laptop and played Mahjong for 2 hours. I’ve been…

  • Ocrevus Infusion

    On Thursday, March 19 I had my first Ocrevus Infusion this year. Pete drove me because of my tendonitis and my weak legs. My appointment was at 9;30 and the drug wasn’t started until 10:30. I am on the fast drip which should take about 2 1/2 hours. As I’m looking back I’m realizing that…

  • All My Fault

    On Friday, March 20 for the first time I felt better, almost back to normal, (my normal with MS). I kept busy all morning; I called three doctors and made appointments, paid bills, did some laundry and felt good. It was also the first day that I got out of the wheelchair and started using…

  • Tendonitis and Trigeminal Neuralgia

    Friday night I woke up around 3 am with sharp pain in my left upper thigh and had trouble moving that leg. I couldn’t put weight on that leg without pain, so I couldn’t use the walker and was back in the wheelchair in the house. It was right in my groin. I wasn’t sure…

  • More Dreams

    I did have a very busy night dreaming. I was at a party at Mariska Hargitay’s home. I don’t remember most of it but that is beside the point. I wanted to add that being a very vivid dreamer, all of my dreams have one thing in common: I don’t have MS This allows me…

  • Followup Doctor’s Appointments and Botox

    Primary Physician – Last week I went to Dr. Adams for my followup after leaving the hospital. I like her a lot. For seeing her only once a year she remembers me and is familiar with my health records. After looking through what went on in the hospital, we focused on my lungs. I was…

  • Monthly Weigh In – March 2026

    I am happy to say that my weight this month is 135.6. That is another 3 lbs. I am sticking to my ChatGPT Diet. Lots of non-fat yogurt, fruit, egg whites, salmon and vegetables. I also don’t eat after 8 pm. When I was in the hospital I didn’t eat for three days and I…

  • UTI – Hospital Admission

    On Thursday, February 21, I was still not feeling right. I asked Pete to take me to Bon Secours Urgent Care. I decided on this because my primary physician had done a urine culture and prescribed Bactrim, another antibiotic and something for the pain. I had been unable to see anyone in that office. At…

  • Physical Medicine & Rehabilitation Physician 2/9/2026

    This visit with Dr. Moen was to get my first dose of Botox in my ankles or calves. We were all ready and then she asked if I had any infections lately. I currently have a UTI, (urinary tract infection) and I am being treated with Nitrofurantoin Mono-MCR 100 mg. Well that ended that. You…