Category: My Life with MS

  • Making Lists and Counting

    I like to make lists, of everything. There are lists of things to do, which keep me focused and make me more inclined to accomplish what is on those lists. For me to pick up the phone and call a friend, relative, anyone at all, I have to put it on my list of things…

  • Stopping Methylphenidate ER 20 mg

    I have been taking Methylphenidate ER 20 mg. daily for about 2 years. Each month I need a new Rx called in because it is a controlled substance. My doctor is great with that. I was prescribed this because so many of my maintenance drug make me tired and this would help me stay awake.…

  • Monthly Weigh In – April

    Here it is 143.2 lbs. I expected this or more. This time I am really noticing how big my stomach and thighs are. For the first time there are clothes that DO NOT FIT AT ALL! So far I’ve taken a top and today a pair of jeans off and put them right in the…

  • Day Tripper – Williamsburg

    This past Saturday I made plans with another friend from the garden shop, Stevie. We work together on Wednesday’s and we’ve gotten to know each other. We have different backgrounds but we also have quite a few things in common; (age, politics, divorced moms, religion and of course gardening). Anyhow, her boyfriend was going away…

  • My Sister

    My sister. She is 9 years older than me and my only sister. She told me from a very early age that “we can never be close because of the difference in our age.” Very hurtful, as she has been my entire life. I have friends older than she is. The same time she said…

  • Isolating

    It started about a month ago. The garden shop shut down for renovations, (painting and new carpet). I didn’t know how I would feel but as time went on, I felt myself turning inward to the same old worries and obsessions. The things I push aside to go about daily living came soaring back. The…

  • Monthly Weigh In – March, Options Weighed

    I knew this one would be more; 142.8, I feel it and I look it. What to do? I need to get serious, yet I’m not ready to commit. I understand there are exercises I can do with MS but honestly none of them appeal to me. They all seem like work. Without MS I…

  • Quick Trip to NY

    President’s Day weekend – Left Friday am and came home Tuesday am. Best trip as far as traffic. We took my Highlander, which I was excited about because I can drive it wherever I want (because of the hand controls). We went up so P could help my son finish putting up the cabinets in…

  • “A Man called Otto,” and my friend Cat

    Last Tuesday I finally got to see “A Man Called Otto.” Cat and I had plans two weeks ago to see it and then she died. She had read the book and from when we saw the previews in November, she was excited to see it. I had not read the book. Nevertheless, I went…

  • Setting Goals cont’d

    Now that I am over myself and realized, yes I did set many goals such as going to college at 29 years old, getting a second job whenever I wanted something that I could not afford on my day job, going to Italy after I was diagnosed and before I wouldn’t be physically not able…