Category: My Life with MS

  • “When I’m 64”

    “they say its your birthday, it’s my Birthday too, yeah……” Yup it is my 64th birthday. I’ll be at the garden volunteering. P asked me where I wanted to go for dinner, I don’t know. Unfortunately I still get excited by birthdays. I want my family and friends around, not likely this year and thats…

  • Being Content or Being Happy or Being Both

    I recently watched a segment on this subject, on where else but The Today Show. It struck a chord with me because I am not happy and haven’t been in a long time; BUT can I be content? Yes I can! I can get joy out of just being content. That is a positive. Being…

  • Motivation Back, (Somewhat)

    Today is Saturday and I feel motivated. When I am done with this post I am going to download a ton of pictures from my phone that I can use for more posts on this blog. I didn’t do it before I wrote because I know me: It is going to take such a long…

  • Staying Focused

    I’m sticking to this theme because I continue to have no focus. In my head I have tons of subjects I want to cover in this blog. Some of them I write down, never to visit again because it is written down, therefore I have an endless amount of time to cover it. Others are…

  • Doctor Visit – 6 Months

    Yesterday I had my six month check up with my MS doctor. Everything seems to be the same as far as symptoms. I had my 6 month dose of Ocrevus 2 weeks ago. He explained to me that being on Ocrevus you are depleting your B cells which help your immunity. So as far as…

  • Motivation – Lack of

    This has been a tough week. I can’t fight the feeling of being in limbo. I’m finding it hard to have any direction, I’m feeling defeated and lazy because I have no motivation to get anything done. There are things for me to do that I talk myself out of. I don’t want to be…

  • Depression Finding Me, yet Again

    This has been a tough week for me. I have been missing my children and felt the need to be around them. I’ve been texting with my daughter and my son is amongst the missing. Ever since I texted him about the free trip to Busch Gardens, I haven’t heard anything. That tells me that…

  • Prolia Update

    Finally, I got a call this morning from the Endocrinologist’s office to schedule my first Prolia shot, yahoo. Who would have thought I’d be so excited to receive this. Hopefully it will do what its supposed to and make my bones stronger. Maybe strong enough that I can skydive? Instead of doing it for my…

  • Monthly Weigh In

    Today’s weight is 139.8. When I received my Ocrevus infusion last week, my weight was 143.4, fully clothed with sneakers on. Anyway, I am now consciously dieting using the app, “My Fitness Pal,” which is a free calorie counting app. The free version lets you scan barcodes, insert your own recipes and totals calories for…

  • Specialty Drugs and Insurance

    Last Thursday I received my 6 month dose of Ocrevus. I have been getting this infusion for 7,8,9 years? Is it working? I don’t know. My MRI’s show no active lesions for the past few years. It is my decision whether I want to continue taking this drug and for now I will continue. The…