Category: My Life with MS

  • Monthly Weigh In

    Today’s weight is 139.8. When I received my Ocrevus infusion last week, my weight was 143.4, fully clothed with sneakers on. Anyway, I am now consciously dieting using the app, “My Fitness Pal,” which is a free calorie counting app. The free version lets you scan barcodes, insert your own recipes and totals calories for…

  • Specialty Drugs and Insurance

    Last Thursday I received my 6 month dose of Ocrevus. I have been getting this infusion for 7,8,9 years? Is it working? I don’t know. My MRI’s show no active lesions for the past few years. It is my decision whether I want to continue taking this drug and for now I will continue. The…

  • “In My Own Little Corner…….

    ” In my own little corner, in my own little chair, I can be whoever I want to be” This line is from a song in the movie, “Cinderella”, released sometime in the 60’s, the one starring Leslie Ann Warren. This verse has stayed in my mind all these years. I’m guessing it’s the escape…

  • Traveling with MS

    Now to the difficulties I encountered everywhere we were. Staying with his mom I had to do a full set of stairs twice a day and occasionally another set of stairs into the basement. In the shower I needed help in and out. No difficulties in the restaurant, except walking through the bar with my…

  • Granddaughters 2nd Birthday

    We arrived on her birthday for a small party, just family. My ex-husband was supposed to be there but his flight had been delayed, (thank God). It was very enjoyable, she loved her Fudgie the Whale cake from Carvel. So did I and everyone else! Of all the Carvel cakes I’ve had over the years,…

  • On the Road Again

    Back to NY again, for our granddaughters 2nd birthday! I am thrilled that we’ve gotten to spend time with her twice in the past two months. Her party was on Saturday, the 21st, and her real birthday was on Wednesday, the 18th, which is when we arrived in Westchester. We arrived in NY on Sunday,…

  • Celebrities with MS

    My question is, “Are celebrities who have been diagnosed with Multiple Sclerosis inspirations to me or other non-celebrity people who have MS; or are they inspirations to people who do not have MS and feel their stories are inspirational for them?” I bring this up because recently Selma Blair was on the Today Show and…

  • Mother’s Day 2022

    This is the second year that I have not received a card from my son. I am very hurt by this. He and his family are in Disneyworld right now. I didn’t receive a phone call until 9 pm. By that time my hurt had turned into anger, (as it frequently does). He apologized and…

  • Monthly Weigh In

    Here we go, tada……140.2. Again I am not consciously dieting. With P being away I don’t eat as much, which proves to me a few things: 1) that I stress eat; 2) He always brings home treats, candy, pizza, etc.; 3) I feel pressure to cook when he’s home. The main problem is me! I…

  • To Be Fair

    I feel I need to write this post because I have stated over and over again the horribleness of my marriage. P was in Brussels for a week, last week. I had a good week without him, I always do. When he came home, he was actually pretty nice. He took me food shopping, and…