Full Mind

Category: My Life with MS

  • Sick Again

    The day they left I started getting a sore throat and cough, followed by a runny nose. Pete did too. I didn’t try to stay away from them, especially Brylee who was coughing all over me. The cold started affecting the MS and it was getting hard to walk. I thought, “please not again???” Anyway…

  • Pulmonary Doctor

    Today was my first visit with the Pulmonary Association of Virginia. I had an appointment at 11 am with Doctor Alice Herlihy. I got there around 20 minutes early and I was the only one on line to check in. There were six check in stations with someone at every station and no patients. There…

  • Monthly Weigh In – April ‘26

    Monthly Weigh In – April ‘26

    Yeah! 133 lbs. I lost two more pounds. I wasn’t sure because I’ve eaten out a few times and had some drinks. I ate some pasta and very little bread. If anything, I was hoping I was the same weight as last month. Very happy with the results. I am sticking to my AI Mediterranean…

  • Whack a Mole

    When I wake up, I am always experiencing some type of pain. I relate it to the game, whack a mole. Since November it’s been one thing after another. One day the pain could be in my right hip; could be a cluster headache; could be a stiff neck, swollen feet, pulled tendon, Trigeminal neuralgia,…

  • “Can Do” Versus “Can’t Do”

    I had a virtual appointment with my therapist this week. We talked about how I always concentrate on what I can’t do instead of what I can do. This wouldn’t be the first time and probably not the last time this will be discussed. I’m a very slow learner, or more likely, the things I…

  • Health Update

    Today the headache is gone. I’m still using the wheelchair and taking Meloxicam once daily for the tendon in my groin. Last night I started having a stiff neck. That’s nothing new, it comes and goes. It’s probably my fault because yesterday I went on my laptop and played Mahjong for 2 hours. I’ve been…

  • Ocrevus Infusion

    On Thursday, March 19 I had my first Ocrevus Infusion this year. Pete drove me because of my tendonitis and my weak legs. My appointment was at 9;30 and the drug wasn’t started until 10:30. I am on the fast drip which should take about 2 1/2 hours. As I’m looking back I’m realizing that…

  • All My Fault

    On Friday, March 20 for the first time I felt better, almost back to normal, (my normal with MS). I kept busy all morning; I called three doctors and made appointments, paid bills, did some laundry and felt good. It was also the first day that I got out of the wheelchair and started using…

  • Tendonitis and Trigeminal Neuralgia

    Friday night I woke up around 3 am with sharp pain in my left upper thigh and had trouble moving that leg. I couldn’t put weight on that leg without pain, so I couldn’t use the walker and was back in the wheelchair in the house. It was right in my groin. I wasn’t sure…

  • More Dreams

    I did have a very busy night dreaming. I was at a party at Mariska Hargitay’s home. I don’t remember most of it but that is beside the point. I wanted to add that being a very vivid dreamer, all of my dreams have one thing in common: I don’t have MS This allows me…