Full Mind

Category: My Life with MS

  • July 4, 2026

    This year marked the United States historic Semiquincentennial, celebrating 250 years of American independence. I was very into it, and ordered special shirts and earrings to wear on that day! We went down to NC as planned. In our community, River Bluffs, they had their annual golf cart parade and then we went to the…

  • Monthly Weigh In – July2026

    127.2. Again, better than I expected. I had two pieces of carrot cake, ice cream, chicken wings and some cocktails.

  • Ocrevus, Prolonged Use

    Ocrevus, Prolonged Use

    I had my nine month appointment with my neurologist, Dr. Oh at VCU. We discussed my past two hospitalizations. They were both for infections that exacerbated my MS. It is called a “pseudo episode.” I learned, (which I feel I should have known), that the longer you’re on Ocrevus, the more susceptible you are to…

  • Monthly Weigh In – June 2026

    Monthly Weigh In – June 2026

    I can’t believe it, 128.6 pounds. I’m so happy! This diet is really working. It is quite repetitive even though I am a creature of habit. The other thing I have to work on is firming up. That is where Physical Therapy with Stephanie comes in. She is helping me work on my core, I…

  • Health Update

    It’s been awhile since I’ve written about my health. There’s a lot going on, different doctor’s appointments weekly. When I was in the hospital they did a chest scan and found a small growth in my left lung. The Thoracic surgeon made an appointment for three months at which time he would do another chest…

  • Monthly Weigh In – May 2026

    Whew, I gained one pound, now 134. I haven’t been as strict as I was because we were on vacation. We ate out a lot but I did stick to fish, (salmon, fish tacos). I had some Espresso Martini’s, ice cream, chicken wings and nachos with guacamole. I’m lucky I only gained one pound!!

  • Sick Again

    The day they left I started getting a sore throat and cough, followed by a runny nose. Pete did too. I didn’t try to stay away from them, especially Brylee who was coughing all over me. The cold started affecting the MS and it was getting hard to walk. I thought, “please not again???” Anyway…

  • Pulmonary Doctor

    Today was my first visit with the Pulmonary Association of Virginia. I had an appointment at 11 am with Doctor Alice Herlihy. I got there around 20 minutes early and I was the only one on line to check in. There were six check in stations with someone at every station and no patients. There…

  • Monthly Weigh In – April ‘26

    Monthly Weigh In – April ‘26

    Yeah! 133 lbs. I lost two more pounds. I wasn’t sure because I’ve eaten out a few times and had some drinks. I ate some pasta and very little bread. If anything, I was hoping I was the same weight as last month. Very happy with the results. I am sticking to my AI Mediterranean…

  • Whack a Mole

    When I wake up, I am always experiencing some type of pain. I relate it to the game, whack a mole. Since November it’s been one thing after another. One day the pain could be in my right hip; could be a cluster headache; could be a stiff neck, swollen feet, pulled tendon, Trigeminal neuralgia,…