Category: My Life with MS

  • Methylphenidate Followup

    I have been taking Methylphenidate ER 10 mg. for around a month now. I take one pill daily, usually between 10 or 11 am. I have not been tired at all in the afternoon since I started. This is like a miracle. I asked for something to help with my constant fatigue and this is…

  • Goodbye New York, Hello New Years Eve

    We are back home in VA. As much as I would rather live in NY, I am happy to be home. The road trip was uneventful. I had felt bad not heeding the warnings about traveling for Christmas. It was very obvious that we weren’t the only ones as the roads, specifically 95N, were just…

  • Traveling for Christmas

    Today my husband and I got tested, for Covid-19. The test we got was a PCR test. This is considered the most sensitive for detecting an active infection and the results are highly accurate. The results come back within 3 to 5 days. We need this because we are travelling for Christmas. The other test…

  • Coronavirus Vaccine

    The Coronavirus vaccine, (Pfizer) is now being distributed to hospitals, clinics, and first responders and people are getting inoculated. Yesterday, Moderna’s vaccine got the go ahead from the FDA and will also start being distributed. Yeah!!! Earlier this week I had sent a note to my neurologist through the patient portal, (how to communicate with…

  • Medical Marijuana and More Useful Drugs to Help with MS Symptoms, cont’d

    I forgot to mention that during my six month neurological visit I discussed two other treatments with him. The first being medical marijuana. I had read that Richmond’s first dispensary was now open and you needed to bring a registered license to get whatever product you need. They had links on how to acquire the…

  • Ocrevus, Kesimpta, My Multiple Sclerosis Drugs

    Last Friday I had my second yearly dose of Ocrevus. I’ve been on it now for about 4 years. Personally I don’t feel it does anything for me. I also had my six month appointment with my neurologist. Again we discussed new drugs. He still doesn’t want to start Mayzent as long as Covid 19…

  • Fatigue, HELP!

    I’ve been trying to be outside in the garden with this cooler weather but I get so frustrated. Lately I haven’t been able to do 3 hours, which I’m happy with. The fatigue is overwhelming. When I volunteer at the garden shop, I’m in my wheelchair and it is 4 hours. I have been coming…

  • Sometimes I feel life going down….

    I woke up this morning feeling very sad. My hope of having everyone here for Christmas has been a bust. Son’s girlfriend is obligated to spend at her fathers on Christmas eve with her two older children, one who goes away to school and is autistic. He would not take to traveling some place he…

  • Thanksgiving 2020

    Happy Thanksgiving all! Though I haven’t posted in a few days, with lots of things on this mind, today’s post is all about thanks and being grateful. I am grateful for my families health and that no one in our family has lost their job during this pandemic I’m grateful that we all have safe,…

  • Michael J. Fox – Chronic Diseases

    I have always been a fan of his since the sitcom “Family Ties”, which my family would watch together. He played a conservative Republican teenager in a house with very liberal parents. It was very funny. Of course he was in “Back to the Future” movies and some others that I can’t remember the names…