Category: My Life with MS

  • Mother’s Day

    Mother’s Day this year was on Sunday. I was going to work since nothing was going on but decided not to. Bryan called me first thing in the morning from DisneyWorld. I got to speak to Brylee. I haven’t gotten a card from Bryan in over 5 years. He swears that he sends them but…

  • Nature Nurtures

    “Nature is a place of balance and is very comforting to me. I get a sense of peace and connection”

  • Love, Love, Love

    All around my house I have the lyrics “All you need is love” and in the new house my original art, “Love is all you need.” Here I am with no love at all. I know my kids will say they love me and I’m sure they do. Neither will go out of their way…

  • Monthly Weigh In – May 2025

    This morning, 144 lbs. I’m still watching what I eat but haven’t been on my stationary bike since my back went out. I have been outside gardening.

  • Purple Hair

    A lady I work with came in one day with really pretty light purple hair, (she has gray hair). I asked her about it and she said it was temporary, she did it herself and told me what brand. She said it’s expensive but worth it. I also have natural gray hair and I’ve been…

  • Feeling Better

    So Thursday I started to feel better. What is the first thing I decide to do? Work outside of course! Its so weird that I can kneel down on my kneeler, stretch to the front, sideways, all over, with my head in the bushes and my back doesn’t go out. Then I sit on a…

  • Self Medicating

    My hip and leg are still spasming with pain. Yesterday morning was hard. I took 2 Ibuprofen at around 5:30 am. When I got up, with difficulty, I decided to take Meloxicam 15 mg. This is the drug that I was originlly prescribed last May when this same thing happened in Hilton Head, that and…

  • Easter

    Yesterday was Easter. We did nothing. I wanted Bryan and family to come down but they didn’t, (see “Family” post. We did portal in the morning. I decided to work at the garden. It’s always a fun place to be, although I don’t like the other volunteer I worked with. Pete bathed and groomed Ellie.…

  • Insurance and Ocrevus

    Today is Saturday, I had my Ocrevus infusion two days ago, Thursday. I previously posted about my insurance, Anthem, denying and then, after speaking with my neurologist, approving it. Well yesterday I received three letters from Anthem. Two were dated 4/10/2025 and said the exact same thing, denial for the infusion. The third letter was…

  • Ocrevus Infusion

    After a call on Monday saying my new insurance had denied approval, I had to deal with several annoying phone calls. Dr. Oh contacted insurance and straightened it out, phew. I was so tired and I could have fallen asleep except the IV kept going off. I wanted to go shopping at Short Pump Town…