Having MS contributes to Osteoporosis, most of us will develop this because of the different drugs prescribed to help with MS symptoms, such as steroids. This really started seriously when I wanted to jump out of a plane when I turned 60 and my primary physician sent me for a new bone scan. It came back and she strongly suggested to me that if by some chance I broke a hip or leg, that my recovery would make my life much harder. This left it up to me and I decided against it.
I have been diagnosed with Osteoporosis for the past ten years. I have been on and off Fosamax and Boniva (bisphosphonates) therapies that have done nothing to help. It was suggested 2 years ago to see and Endocrinologist and go over some other stronger alternatives.
I went two years ago and was supposed to start on Prolia, a Denosumab, a shot every six months. The office was going to call me and schedule, they never did, and of course I didn’t follow up.
Well now I went back to the same endocrinologist, I liked him, and the parking was very convenient and easy for me to use the walker. He told me about some type of scale they use for osteoporosis and said I was the worst possible example and I needed to take this seriously and again scheduled, after blood work, to receive the Prolia. He said if his office doesn’t contact me that I HAVE to contact them. So I am waiting and I will contact them if I hear nothing and will write when I receive my first dose.
The side effects are horrible and quite discouraging. You may get Osteonecrosis of the jaw. This happens when your jawbone doesn’t heal after having a tooth pulled or something similar, also most likely been on steroids. Also taking them for more than 3 to 5 years may increase your risk for a break in your thigh bone. Although he didn’t tell me 3 to 5 years, he said to be wary if I felt pain in my thigh.
Oh what fun it is to have MS, Osteoporosis, Osteoarthritis, ADHD and no love or sex in my life. Yahoo!!