Gardening, music, life with MS
Last Thursday I received my 6 month dose of Ocrevus. I have been getting this infusion for 7,8,9 years? Is it working? I don’t know. My MRI’s show no active lesions for the past few years. It is my decision whether I want to continue taking this drug and for now I will continue. The […]
I have come to the conclusion that I can’t do all the work needed in all the beds I have. I was ahead and now I’m behind. All of the beds were weeded and upon returning to VA, they need to be weeded again. The weather has not been cooperative. Any free time, like yesterday, […]
” In my own little corner, in my own little chair, I can be whoever I want to be” This line is from a song in the movie, “Cinderella”, released sometime in the 60’s, the one starring Leslie Ann Warren. This verse has stayed in my mind all these years. I’m guessing it’s the escape […]
5/24/2022 – Uvalde, Texas – Robb Elementary School, 19 students and two teachers gunned down, plus the grandmother of 18 year old gunman. The gunman was shot dead by a border control agent. Reporters are asking how people feel. Sad, yes, frustration yes, angry yes. Besides feeling deep sadness for the victims, their families, and […]
Now to the difficulties I encountered everywhere we were. Staying with his mom I had to do a full set of stairs twice a day and occasionally another set of stairs into the basement. In the shower I needed help in and out. No difficulties in the restaurant, except walking through the bar with my […]
We arrived on her birthday for a small party, just family. My ex-husband was supposed to be there but his flight had been delayed, (thank God). It was very enjoyable, she loved her Fudgie the Whale cake from Carvel. So did I and everyone else! Of all the Carvel cakes I’ve had over the years, […]
Back to NY again, for our granddaughters 2nd birthday! I am thrilled that we’ve gotten to spend time with her twice in the past two months. Her party was on Saturday, the 21st, and her real birthday was on Wednesday, the 18th, which is when we arrived in Westchester. We arrived in NY on Sunday, […]
I’m still out in the garden every day that the weather cooperates. I have one more bed to clean up. This is the big perennial bed in the front. I have cleaned up most of the perimeter but I need to get into the interior, which is very hard with my mobility issues. Anyway…. everytime […]
My question is, “Are celebrities who have been diagnosed with Multiple Sclerosis inspirations to me or other non-celebrity people who have MS; or are they inspirations to people who do not have MS and feel their stories are inspirational for them?” I bring this up because recently Selma Blair was on the Today Show and […]
This is the second year that I have not received a card from my son. I am very hurt by this. He and his family are in Disneyworld right now. I didn’t receive a phone call until 9 pm. By that time my hurt had turned into anger, (as it frequently does). He apologized and […]