Gardening, music, life with MS
This has been a tough week. I can’t fight the feeling of being in limbo. I’m finding it hard to have any direction, I’m feeling defeated and lazy because I have no motivation to get anything done. There are things for me to do that I talk myself out of. I don’t want to be […]
This has been a tough week for me. I have been missing my children and felt the need to be around them. I’ve been texting with my daughter and my son is amongst the missing. Ever since I texted him about the free trip to Busch Gardens, I haven’t heard anything. That tells me that […]
Finally, I got a call this morning from the Endocrinologist’s office to schedule my first Prolia shot, yahoo. Who would have thought I’d be so excited to receive this. Hopefully it will do what its supposed to and make my bones stronger. Maybe strong enough that I can skydive? Instead of doing it for my […]
Today’s weight is 139.8. When I received my Ocrevus infusion last week, my weight was 143.4, fully clothed with sneakers on. Anyway, I am now consciously dieting using the app, “My Fitness Pal,” which is a free calorie counting app. The free version lets you scan barcodes, insert your own recipes and totals calories for […]
Last Thursday I received my 6 month dose of Ocrevus. I have been getting this infusion for 7,8,9 years? Is it working? I don’t know. My MRI’s show no active lesions for the past few years. It is my decision whether I want to continue taking this drug and for now I will continue. The […]
” In my own little corner, in my own little chair, I can be whoever I want to be” This line is from a song in the movie, “Cinderella”, released sometime in the 60’s, the one starring Leslie Ann Warren. This verse has stayed in my mind all these years. I’m guessing it’s the escape […]
Now to the difficulties I encountered everywhere we were. Staying with his mom I had to do a full set of stairs twice a day and occasionally another set of stairs into the basement. In the shower I needed help in and out. No difficulties in the restaurant, except walking through the bar with my […]
We arrived on her birthday for a small party, just family. My ex-husband was supposed to be there but his flight had been delayed, (thank God). It was very enjoyable, she loved her Fudgie the Whale cake from Carvel. So did I and everyone else! Of all the Carvel cakes I’ve had over the years, […]
Back to NY again, for our granddaughters 2nd birthday! I am thrilled that we’ve gotten to spend time with her twice in the past two months. Her party was on Saturday, the 21st, and her real birthday was on Wednesday, the 18th, which is when we arrived in Westchester. We arrived in NY on Sunday, […]
My question is, “Are celebrities who have been diagnosed with Multiple Sclerosis inspirations to me or other non-celebrity people who have MS; or are they inspirations to people who do not have MS and feel their stories are inspirational for them?” I bring this up because recently Selma Blair was on the Today Show and […]